Trattamento riabilitativo tramite telemonitoraggio in pazienti con distrofia facio-scapolo-omerale (FSHD)
Rehabilitative Treatment through Telemonitoring in Patients with Facio-Scapulo-Humeral Dystrophy (FSHD)
Introduction
There is limited literature on rehabilitative treatment for facio-scapulo-humeral dystrophy (FSHD). Combined aerobic exercises with range of motion exercises have shown to be the most effective, while the outcomes of muscle strengthening exercises remain controversial [1;2]. This study aims to investigate the effectiveness and adherence of a remotely monitored rehabilitative program in patients with FSHD.
Methods
A multidisciplinary approach involving quantitative and qualitative data analysis was employed for this study. Bibliographic research was conducted on research portals such as Pubmed, Cochrane, and Google Scholar to gain comprehensive insights into the impact of rehabilitation and telemonitoring in FSHD.
Results
Patients at Policlinico Hospital of Milan, Ospedale Maggiore, Fondazione IRCCS Ca’ Granda diagnosed with FSHD, 18 years of age or older, and able to ambulate were recruited. Patients unable to ambulate and with comorbidities that might interfere with study outcomes were excluded. Recruited patients will be assessed by quality of life questionnaires and functional tests at the beginning and end of the study. Patients will be left with a card of aerobic exercises, resistance exercises and flexibility exercises to be performed 4 times a week for a total of 16 weeks. During the course of the weeks, 2 televisits will be performed to monitor exercise progress.
Discussion and Conclusion
So far eight adult patients with FSHD were recluted. The 16-week study involved remote visits to monitor exercise adherence.
Results have been collected up to the 2nd televisit. The work will be concluded with the analysis of the results.
REFERENCES
- Tawil, R. (2018) «Facioscapulohumeral muscular dystrophy», Handbook of Clinical Neurology, 148, pagg. 541–548. doi: 10.1016/B978-0-444-64076-5.00035-1.
- Voet, N. B. M. et al. (2019) «Strength training and aerobic exercise training for muscle disease», Cochrane Database of Systematic Reviews, 2019(12). doi: 10.1002/14651858.CD003907.pub5.